Extraordinary Measures (2010)

From Netflix: After their two young children are diagnosed with Pompe, a rare genetic disease for which conventional medicine has no cure, John (Brendan Fraser) and Aileen Crowley (Keri Russell) pin their hopes on the work of unconventional scientist Dr. Robert Stonehill (Harrison Ford). Director Tom Vaughan's heartfelt drama is based on the true story of the Crowley family, as chronicled by journalist Geeta Anand in her book The Cure. 2010 105 minutes
Trailer.

Interview with Geeta Anand (author of "The Cure") about the movie. "The Cure" by Anand."

While parts of this movie are a bit corny, my overall impression was very favorable. It addresses sick children, parental anxieties, cold "scientific" researchers and greedy pharmaceutical companies. There is much here to stimulate one's interest and give pause for thought.